Tuesday, March 3, 2009

Thank you for spreading Awareness!

Carole and her family are dealing with their sadness in a very positive manner. Our prayers are with them during this difficult time.

One thing that was accomplished by Liver4carole was that we have provided awareness for transplants and how they can help save a life. I personally have, because of Carole, become an organ donor. I intend to be cremated when I die, so I asked myself why not take the few minutes that it takes and sign-up as a donor. Why? Because when I die a life could be saved! As far as my thoughts are concerned, what a wonderful gift to give to someone, when I'm gone. If one person reads this and donates their organs then so much will have been accomplished.

The funds that have been donated to Carole via Transplants.org will be utilized for her trip to Mayo and all of the testing, etc. that was provided for her during the evaluation process. Thank you to everyone who has donated or have passed the word about her in blogs and other social messaging systems. According to her daughter Carole was amazed at the outpouring of love shown by complete strangers to her. Personally, as the creator of Liver4carole, my belief in mankind has been renewed. One day, as I arrived at the office and checked my computer was a donation sent to my personal paypal for $100.00 to benefit Carole...as I burst into tears my coworkers were concerned at what had upset me. They were, not tears of sadness, instead they were the most instense tears of joy that I have displayed in a long time! Who would suspect that random acts of kindness would be so great, so caring and so intense from people who do not know Carole, her daughter, or myself.

If you make a decision to donate your organs you can read about how to designate such:


The Shortage (Overview)
Each day, about 77 people receive organ transplants. However, 19 people die each day
waiting for transplants that can't take place because of the shortage of donated organs.

On a lighter note, we have winners in the "Spring to Action" contest! Congratulations go out to Wonderfullymade729 & Painter Mommy. Thanks for spreading awareness for Carole.

The world has proven to me, it's brightest light, love.

Susan Rosen

Sunday, March 1, 2009

Letter from Cindy

We received the news late last Friday my Mom has been turned down by Mayo for a liver transplant. The purpose of going there was for evaluation which is required pre-transplant. While there we received fluctuating reports that seemed promising to not. Then, the 'selection committee' comprising 14 doctors were going to meet last Weds to decide whether or not to proceed. Initially, she passed their strict MELD criteria; however, at this meeting, it was unanimously decided not to put her through this citing several factors. There was also great concern the necessary aggressive radiation would blow out her liver, instantly killing her, since her liver is so cirrhotic from the cancer. 4 people came forward who are the same blood type as her & were willing to be considered as living donors & undergo the evaluation process; but, still Mayo is saying no due to the fact she is stage 3 or 4 & just would not be able to bear the required radiation.

I have received constant requests to see how she is, what the status is, etc. It's been hard to keep up. I have admittedly held off replying because we just needed time to digest this & at times the so-called prolific me was at times incapable to even speak at all. Despite the fact I knew this was probably the reality & saw this forthcoming, it's like when you know something in the back of your mind but when you are finally told, you still need time to accept yielding to God's will. We also had to ensure all family received this news first as well contact National Foundation for Transplants who were the runs running her campaign as directed by Mayo. She will no longer be highlighted by them nor have a website.

Initially she was quite upset to get the news; however, her spirits are good. She stated she accepts this. Her treatment is now going to be taking chemo by pill form. The rest will be palliative. Just prior to Mayo's call, she had just bought luggage with wheels in hopeful anticipation she would return there as we were supposed to. When I asked her what she is going to do with that now, she smiled & said take a trip to the Grand Canyon because I always wanted to see it. She has a peace in knowing being finally turned down could have been the reality & states she is satisfied she went there to do all she can especially to get not only a 3rd but expert opinion. While she was there, she agreed to be part of a study that will hopefully pinpoint cholangiocarcinoma in the years to come since it is such a rare cancer. Mayo also told us they do NOT know how she got this. We were told life expectancy is 1 year, 2 tops with chemo. But, staying positive, who knows for I have seen people on the cholangiocarcinoma.org site I registered her on say they were diagnosed at some point but there are some there who have in their blogs they are now 6 yrs past the diagnosis, etc. It really is in God's hands & His will. She has acknowledged this.

Via National Foundation for Transplants, all current campaign & fundraising efforts will remain in place until they run their course which will cease on or approximately to the end of Feb. All funds that they have received were applied toward the transplant evaluation process [bills, prescriptions, expenses, etc.].

I can't thank you enough nor tell you how your display of love, support, care, friendship, encouraging words, notes, cards, & prayers that have been extended to my family, her, & me have meant the world to us & me personally. We are simple, modest, & private people, & it has not been easy to be thrust involuntarily into the public spotlight overnight like this; however, the continuous worldwide outpour has been astonishing. When we were at Mayo in between appointments or when she was not tired I would show her as much as I could all the messages of hope, prayers, emails, etc., bestowed to her on her Facebook, Myspace, & Twitter accounts that the Transplant Foundation said to set up. It's had us at times speechless & in tears. Thank you for touching us & for your kindness that has sustained us. It has meant the world.

There is good & reasons for all things & there definitely has been good to come out of this that has, I think, blessed all of us. I know I am personally more humbled & appreciative of all persons & life itself. People also have stepped forward saying they would now consider donating organs &/or have an expanded educated awareness of the importance of organ donation they never knew much about before. Things are not in vain & I have no doubt besides the child's life my mother once saved that through her life & this fluke rare cancer that others' lives will also be saved &/or improved.

Thank you so much for all you did. I am sending you this as a blanket message to everyone fully knowing what many have you have done &/or if I thought you also may have anonymously done something as well for which I have no way of knowing. I am extremely grateful, appreciative, forever touched, & changed for the better. If any of you have any questions please don't hesitate to ask. I am doing OK & strong but wanted to be able to collect myself so I could better come to terms with this news as it has been an emotional week; however, God is good, so are you, & I am happy He is good to have brought me the goodness in you. Thank you so much again.
Cindy Stites & family

Friday, February 13, 2009

Good news so far from Mayo!!

FANTASTIC Valentine's Day News so far for Carole!!

We received the news so far my Mom has passed all preliminary protocol stuff [heart, blood thinning, lungs, etc] SO FAR, There is nothing eliminating her right now from being a candidate. On Weds, the selection committee will decide once & for all as well as once they receive cytology biopsy results.

Her doctor will call her Thurs or Fri. If she is a candidate, she will be bumped to top of list due to the fact it is a tumor. Also, she will become a national figure because of the rare nature of the cancer!

We have our flight booked for Saturday, so we will be going home to await the results. Depending on what they reveal will determine how soon we return for her to begin aggressive radiation & chemo.

Thanks to everyone for their prayers, keep them coming!!

Thursday, February 12, 2009

Liver Transplant Awareness Info!

Cindy and Carole attended a class in Mayo, which will provide insight about Liver Transplants:

"While at Mayo, they sent us to an organ transplant class, specifically re: the liver. We learned there is no age limit in a transplant candidate. A 90 yo man can get one. As long as the criteria are met. Criteria includes ensuring everything else is healthy to withstand such a major surgery. For a transplant, it is HEIGHT that determines suitability. If a person is 5'4" & the height of the available organ donor is also the same, that organ is considered. If a person is 6', the donor would also have to be 6', & so on. CHILDREN are more priority than anyone else. Also the severity of the illness is also top priority. The person must have less than 2 years to surivive. The wait-time for an organ is about 1 year. The liver weighs about 3 lbs & is the size of a football.

Mayo has a team of doctors, clergy, social workers, psychologists, etc., who meet every Weds for a selection conference where they decide on a weekly basis who is & not suitable for an organ transplant based on their criteria. It is not easy to get a transplant. Their goal is that the patient will be successfully thrive post-transplant. Mayo's 1st liver transplant was in 1985.

For more extremely interesting data, go to UNOS on the web that provdes data, UNOS sites for transplants [there are only 11 centers in the U.S.] as well as their donor awareness directives.

Mayo requires 8-10 hours once called for an organ to get from home to their site for transplantation.'"

Update about Carole

Just in from Cindy (Carole's daughter) Carole is getting more tests & procedures done, final tests tomorrow, returning home on Valentine's Day!

Thanks Cindy!

Tuesday, February 10, 2009

Carole arrives at Mayo!

Cindy (Carole's daughter) has updates for everyone that is following Carole's progress, they have safely arrived in Mayo:

Cindy writes:

"My laptop crashed yesterday. my friend's brother lent me his so I will have limited access. I am on the guest pc at the hotel. unfortunately, i left the power cords home so i will not be able to use the laptops much at all nor reconfigure mine. it's been a long day. I will be keeping in touch providing updates via facebook because it's the easiest way."

"On the shuttle from the airport to here we met a guy 44 yrs old from boston who had cholangiocarcinoma & received a liver transplant but is coming here for checkups. he gave us very valuable information. His wife & I exchanged email addresses because they now are part of the 'fan club' of my mom's, but we all agree we probably will run into them throughout the week at Mayo."


We should hear more once Carole's test results start to provide more insight into Carole's future prognosis in regards to a Liver Transplant.

Cows on skis?

I asked Cindy what she could tell us about visiting MN and Mayo and she responded with:

"I noticed people ski all over to get to locations. I can only imagine if we were home (outside of Philadelphia) what that would be like all of us skiiing to get to locations. We'd probably be put away! So, besides Mayo, which is a very huge place, a sort of city within a city that you can traverse underground, I didn't see anything but the twin cities of Minneapolis & St. Paul, grazing cows, & people on skis!"

I'm so glad that Carole and Cindy are able to keep their spirits high, sounds like they had some laughs together! I would love to see the cows skiing...oops I mean the people skiing to get around, that sounds much better then filling up at the gas tank in Philadelphia!

Sign up for Carole's Newsletter for continued updates on her progress and their trip to Mayo. You can help Carole's quest by entering the "Spring to Action" contest and help us spread awareness about Carole's need of a Liver Transplant. You could win your choice of 10 fantastic handmade items donated by various artisans.

Donations are appreciated, you can donate (using paypal or credit cards) in honor of"Carole Stites-Luka" at:


Monday, February 9, 2009

Carole's blog featured on Transplant.org!

Transplant patient using blog to raise awareness and fundsFeb. 5, 2009 – After visiting her doctor for a routine checkup in 2008, Carole Stites-Luka, of Glenolden, Pa.....

Wow, check it out!

Donations are accepted "in honor of Carole Stitles-Luka"

Thursday, January 29, 2009

Spring to Action contest!

Win huge amount of gifts by bringing awareness to Carole's Liver Transplant
**It's easy***

No donations necessary to enter! But they are appreciated, you can donate in honor of Carole Stites-Luka at:

Help us "Spring to Action" and
and here are just some of the items you could win:

20 Fantastic Prizes - TWO WINNERS!!!!!!!
Anyone can win, open to all entries!!!!!!!!!
One grand prize winner and one runner up!!

see "how to enter' below!




First prize winner, gets choice of 10!!

2nd prize winner gets remaining 10 items!!

SO SPRING TO ACTION and helps us build awareness about Carole's desperate need for a Liver Transplant!

hemplady4u.etsy.com - Her own Design for a Carole Bracelet - thanks Hemplady!!

laacesplaace.etsy.com Laacesplaace's popular cupcake pin cushion and Flower Pin! The lovely Cupcake pin cushion will be a Yellow cupcake with Pink icing.

Generously donated these items:


Thanks to a talented artist from Cape Cod, for donating this whimsical, original ACEO!

A Gorgeous Necklace, Earring and Bracelet set, value $80.00!:

Thanks for the donation of 3 slices of Goats milk soap Counts as 3 prizes!
1)Java Mocha 2)Tropical Indulgence 3)Strawberries & Cream
(pic is just an example, slice soap only)

Donated this lovely African Necklace:

seastardreams.artfire.com - Thanks for the donations from this new Artfire shop!

Two free advertising spots from the newest Indie Coupon Portal!!


Giveaway Rules: (Be sure to follow the rules or you risk being disqualified)

Rule #1 -
Read about Carole's Story here:
Carole's Story

Rule #2 - Comment here!! Make mention of something in Carole's story that struck a nerve in your life. EARN 1 ENTRY

Rule #3 - After you have done the above, you can also gain additional entries by doing one of the following (just remember you must complete rule #2 first!)

Here are several ways that you can earn extra entries, Leave a separate comment here for each one of these that you do!!

1. Add this button to your sidebar or website (for contest duration) EARN 2 Entries:
Copy and paste to use - link to http://liver4carole.blogspot.com

(button donated by: Falcondraco Thank you!

2. Add this Button to your sidebar or website (for contest duration)EARN 2 ENTRIES.
Copy and paste to use - link to http://liver4carole.blogspot.com

3. Blog about this giveaway (and not just a link in a giveaway list - it needs to be a full blog post about the giveaway (counts as 5 ENTRIES!!!!!)(note, using sites like Myspace, I love Etsy, etc. and putting a full segment in about Carole and this giveaway counts as a blog post.

4. Twitter about this giveaway (copy & paste) - @liver4carole Huge "Spring to Action Giveaway" Bash on Liver4Carole http://tinyurl.com/639c3e Enter to win!

(RT (counts as 2 ENTRIES) We can count the amount of these tweets you post, just make sure to twitter the exact wording as above. :)

5.Sign-up for Carole's newsletter (see side panel) learn how to earn extra entries by forwarding the Contest Newsletter when it arrives in your inbox!

***Winners will be notified by email, url or Twitter ID, so make certain to include one of those in your comments!!*****

1st Prize winner gets CHOICE of 10 items, 2nd Prize winner gets the remaining 10 entries
Entries WILL BE closed AT 2/28/09 at Midnight E.S.T.:
Winner(s) drawn using online randomizer

Thanks for entering and helping us build awareness for Carole! A special thank you to all of the Artisans that have donated their handmade items to this contest!


Friday, January 23, 2009

Liver4carole - One of the top 10 best!

Not too much to say, except that Liver4carole is very popular, creative?
Maybe..we saw a need for the word to get out and Twitter helps to fulfill that need!

10 Examples of Creative Twitter uses

Pretty cool since Carole's Twitter Account is up there with Amazon and TV Guide!

Angel Flights Cancelled - Mayo Clinic Rescheduled

I received an Email from Cindy, Carole's daughter. Things were looking grim for transportation to the Mayo Clinic. Two seperate Angel flights were cancelled due to inclement weather and icy conditions on the landing strip(s).

Cindy was now forced to find new transportation for her Mom as time keeps ticking away!

So this is what Cindy had to say:
"We now will be staying in Penna. until 2/8 & my Mom's Mayo appt had to be rescheduled until Mayo's next avail appt which is the next day. We will not be flying on Angel Flights but have confirmed roundtrip tickets sponsored by Mercy Airlift, American Cancer Society, United Airlines, & Natl Patient Transportation. We hope to return on 2/14 but if she needs to be kept at Mayo are able to change the return flight without penalty. I need a chance to catch up so will be in touch with you further, & thanks again to you & everyone for continuous help."

Our prayers are with you both, I'm sure that this trip will leave on schedule and Carole will get to Mayo and have the necessary tests and chemo that is required for her treatment.

Forgotten Heroes!

While tweeting for Carole, I met the producer and director of this film,
Mr Jack Marino:

How exciting!! Looks like a great film!!

Mr Marino is going to place Carole's link on his film page!
In my eyes, she is our Forgotten Hero!

Tuesday, January 20, 2009

We have a Contest Winner!!!

The winner is:
Lisa Davis
from Pennsylvania

Lisa owns the Etsy shop:

Lisa is the creator of the "Carole Bracelet" and will be donating one of the bracelets for our next contest, "Spring into Action". The next contest will not require donations, so anyone can play, see our upcoming contest rules for details!

Congratulations Lisa!!

Sunday, January 18, 2009

Item Donations needed for next contest!!

So much is happening to help Carole!

The present contest will end at midnight E.S.T. on 1/19/2009, we are gearing up for a new contest "Spring into Action" that will feature a giveaway of Spring items. If you have an item that you would like to donate please contact:
Sue at liver4carole.blogspot.com

Sign-up for updates concerning Carole's progress and future contests/fund raisers. See the top right of this blog to subscribe to the newsletters.

Mary Richmond has donated this original ACEO to the next contest "Spring into Action":
Thank you Mary, a fellow Twitter friend! Vist Mary's shop!

Thursday, January 15, 2009

Contest Extended until 1/19/2009!!

Great news, the contest below has been extended for a few more days, the new deadline is 1/19/2009 at Midnight E.S.T. The winner will be announced on 1/20/2009.

Reason? The Transplants.org/ website was down for a few days for scheduled maintenance, there were several people that wanted to donate and enter the contest, but were unable to access the site, so we are answering the call!

See all the homemade goodies/vintage items, free advertising, and gift certificates that one grand prize winner will receive here:contest blog main post